Knowing…

I don’t know what’s going on, I keep dropping things and my hand looks thin.

Now I know, it wasn’t my clumsiness. My neurologist called it ALS? What the hell is that, I don’t understand.

A crash course in all things ALS. Not what I expected; came out of nowhere!? What now? It’s good to know what we are dealing with, but I don’t know what to do next.

I don’t know what I will lose next, my hands won’t do what I ask of them any longer. It has helped me to meet others with ALS, now I know what to expect and it scares the hell out of me.

We’ve talked about what is to come, we don’t want to know, yet we already do. What we don’t know is when or how, and I’m ok not knowing. The one thing I know for certain, is that your love and support makes enduring ALS bearable, this I know in my heart.

TJ&O

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