(I’m just sharing, what’s in my head)
At this point in time, in the history of ALS, there is no cure. There are 2 meds, countless potential treatments in development and an army of advocates tirelessly working to end it. So as persons living with ALS we engage, support and wait. We wait, wait for treatments, wait and watch others become free of ALS, as we await the same cure.
After I am cured I would like a few things to happen…
Celebrate my life with me, in spirit; my life without ALS, preferably with an open bar. Keep fighting to create a world without ALS for others. Take care of yourself, take a break, take a trip but most importantly take the time to meet yourself again. Open your heart to new possibilities, new people. Remember me but don’t obsess, I know it will be difficult, wink.
Live, live, live… you have earned it in spades as a caregiver.
My wish for you.
My wish for all affected by the three dreadful letters, ALS.