On behalf of all pALS and cALS everywhere.
You look at me and ask yourself; they look angry, I wonder why? Then you look back and you notice a smile, such a mixed bag of emotions. ALS is a condition that challenges not just our body but our minds and our emotions.
Many if not all of us p/cALS have a roiling wave of anger just below our outward affect. Many allow this constant flow of anger, much like a river of lava, destroying all in it’s path. Most keep it hidden just below the surface.
So you may ask, why?
I am ANGRY!
Angry because ALS came into our home uninvited and violated our lives. It assaulted our bodies and souls, stealing our future, our family.
I AM ANGRY BECAUSE ALS HAS SHATTERED THE SANCTITY OF OUR LIFE, BROKEN OUR HEARTS AND BODY!
I AM FURIOUS THAT THERE IS NOTHING WE CAN DO BUT WAIT, AS THE SPECTER OF DEATH LOOMS OVER US!
I am exhausted from the weight of this knowledge. My voice, my mind is hoarse from screaming. My soul is in need of a nap, before it collpses…
(Juan A Reyes)