WTF are families or caregivers of a pALS to do, when the professionals hired to care for said pALS, abandon their post?
Really! So you’re telling me an untrained, unpaid lay-person has more integrity than the effing professional! This should be a testament to the sheer magnitude, workload, intensity and dedication required of a cALS. Does this not resonate loudly as to the need for the general public to fucking get a clue about ALS.
Seriously a fellow pALS who is trached was abandoned by their nurse. No warning, no notification to the agency, just up and left. As a previous health care professional, this is unfathomable to me. How can we as a terminal community overcome the sheer ignorance and disregard for our lives. Failed by government three letter agencies and apparently our care is too much for a professional; what next!
To the pALS it happened to, I’m so sorry you had to experience this. It is utterly unacceptable. I pray this never happens again, unfortunately I believe it is more prevalent than we realize.
We must, as a society do better, we simply must.