Light & Dark, Good & Bad, you can’t have one without the other. The key is what you focus on, which one do you feed more.
ALS as you know by now is relentless, regardless of slow or rapid progression ALS takes the life it has latched onto, everyone. There are so many examples of individuals who feed the light altering the face of ALS. What you don’t hear of are the thousands who are devastated beyond reach of the light, they are there, I have met some. My heart breaks for them and I wish they and their loved ones could be spared.
It is inevitable that we as pALS will experience both ends of the spectrum, I do. So how do I keep myself from getting lost in the dark? To be honest it would be very arrogant for me to offer an answer, I simply dont know. However I can tell you what I think it is. The love and support of my family and friends for one. Another is my personal perspective, I don’t have the inclination nor am I willing to offer what limited time I have to the darkness. Even with limited physical capabilities “I Am Here!”
I will, unavoidably, experience and accept those dark moments, but I will not feed them. Don’t get me wrong, it’s damned hard to break away from negative energy. You see it wraps you in false comfort and warmth. Eventually locking you in its true cold embrace.
Don’t lose sight of the light, it’s all around you. Sometimes it looks like a smile, an extended hand or a simple hello. Once you let it in it will envelope you and make it easier to endure moments of darkness.