It’s OK to have a Sh***y Day

How are you?
Ahhh! If someone asks me that I will scream!

How the hell do you think I am?! My loved one is dying, I’m loosing them a little everyday. I am exhausted, stressed, and don’t have time to put up with nonsense. My loved one hates that they depend on me for everything now. I know it’s painful for them to feel this way. I try to not show my frustration, but it boils up sometimes.

I’m sorry you can’t do… any longer. I’m sorry you’re embarrassed to be seen this way. I’ll be patient and support you. When you’re ready we can move on from this isolation, until then I am here. I personally don’t care what others think or feel, I know who you still are. You are mine and I am yours, that is all that matters.

I know I snapped at you, that was in response to you snapping at me. Neither of us meant the things we said. I know they are in fact aimed at your ALS, we just happen to be in the line of fire.

I know, I know, you do tell me you are fine, but I know you, you’re not. Thank you for being brave for me.

I effing hate ALS!

This sh***y da will pass. But right now it’s okay to feel the way I do, I’ve earned it.
(Dedicated to caregivers ❤️‍🩹❤️‍🩹❤️‍🩹)

Juan Reye

One comment

  1. Sonia · April 7

    Yes, this. 😢 🫂


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